VICTORIAS STORY

VICTORIAS STORY - BY MUM EMMA

 

We will add this to the 'Your stories' section of our website and please share on your own social media. We would love to hear your children's stories either in your words or from your child. It can be about a whole journey or perhaps just a few words from your little one about how they feel going to hospital, for example.

 

This is Victoria, she is 5 years old. She was diagnosed in October 2019 with nephrotic syndrome. It all started off when Victoria was only 3 weeks old. She wasn’t well and had a urine test done, the doctors found blood in her urine.

 

Eventually her doctors in Dumfries did a blood test and that’s when she was diagnosed. Victoria started on steroids and other medication.

Her protein leak got quite high so she was admitted into the Royal Hospital for Children in Glasgow. She had infusions, tests and a biopsy and started on other medication.

 

We travelled from Stranraer to Glasgow regularly to see her doctors - the medication didn’t seem to be helping. In May 2020 her doctor called to speak to us both to let us know Victoria’s genetic results had come back. It confirmed that Victoria’s nephrotic syndrome was genetic.

 

At some point in the future Victoria will get a kidney transplant. She is on a lot of medication and has regular hospital check-ups, where she gets blood pressure tests, weight checks, blood taken etc.

 

She loves her doctors and nurses they all make her feel like she’s at home. She loves to carry on with them all and have a giggle.

 

Victoria also has a heart condition on top of her nephrotic syndrome but despite all that she’s the happiest little 5-year-old you will ever meet. She is always smiling and is so amazing.